We started giving her prednisone (sp??) at the start of her fevers but that made the fevers come more frequently...so they started her on another drug which made them grow farther apart until we thought they had stopped. And so, we stopped worrying about them and/or not noticing them as much. But, let me know you, we all know when an episode is coming and they are not fun!! She starts with a lack of appetite, headache, tired, chills and of course the HIGH fever. We don't get worried when she has the 104.1 fevers b/c we know what it is. But, they are frustrating and they knock her out for a couple days. I can't even imagine how they must make her feel but I feel bad for her b/c she just wants to be involved in school and activities that she will ultimately miss. These things used to keep her off her feet for about 3-5 days...but we've figured out that if we pump her full of motrin/tylenol before the fever even gets real high, it will only last about 1-3 days...and she is perfectly fine while the tylenol/motrin is in her system...and we can always tell when the drugs are wearing off. Needless to say, we don't leave home w/o drugs for her!!! It's just like we don't leave home w/o my wine and a bottle opener...you know, the basic necessities???
Friendly's- WE LOVE FRIENDLY'S Yes, we go every time my MOm is here for a visit. It's her thing for the kiddies...and they love going. We've come a long way in going out to dinner at Friendly's...we've also added on to our evening out (you know...used to be DJ and Kyra but now we also have Max and Franny Girl). This trip was a productive one...we only made a minimal mess and the crayon Max put all over the table came off pretty easily...and Franny Girl sat in the hi-chair and SHEATEREALFOODFORDINNER...YEAH!!!
Random thoughts- my children eat napkins...at least, I'm pretty sure they do b/c every time I turn around, they are missing and/or gone!!! Where else could they possibly go??? Must buy stock in napkins!!!
Herre is a pic of some cookies I made tonight: